Page 1: Information Sheet

You may read the following information sheet in detail if you wish, or scroll to the bottom. Clicking 'Next' at the bottom of the page will mean you are satisfied with the information provided and will begin the actual questionnaire.

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Title of project: Investigating the bilingualism advice given to parents/carers of children with Speech, Language and Communication Needs in bilingual families

This study has been approved by the Ethics Chairs, Language and Cognition Department, UCL Division of Psychology and Language Sciences, Project ID LCD-2021-01.

1. Invitation to Participate

You are being invited to take part in a research project.  Before you decide whether to take part, it is important for you to understand why the research is being done and what participation will involve.  Please take time to read the following information carefully and discuss it with others if you wish.  Ask us if there is anything that is not clear or if you would like more information.  Take time to decide whether or not you wish to take part. Thank you for reading this.

2. Purpose of the Study

This study aims to research advice on language choices received by parents of children with Speech, Language and Communication Needs (SLCN) from bilingual or minority language backgrounds. It aims to understand the influences on parental decisions about home language use and maintenance. This research will inform a broader understanding of professional guidance and parental considerations on making decisions about bilingualism for children with SLCN. This questionnaire is also being carried out in the Singapore where bilingualism is the norm, to compare responses and experiences across the two countries.

3. Why have I been chosen?

We are seeking participants from bilingual/minority language families, who have children (currently aged 12 and under) with Speech, Language and Communication Needs currently receiving, or have received, speech and language therapy (SLT) services.

4. Do I have to take part?

The study is entirely voluntary and it is up to you to decide whether you would like to take part.  Your informed consent will be confirmed at the beginning of the questionnaire.

5. What will I be asked to do in the study?

You will be asked to complete a questionnaire online needing an estimated 15-20 minutes. Questions are a mix of multiple choice ones, rating scales and open-ended questions. You may save a draft and continue later, if you are unable to complete it in one sitting. You will be asked a series of questions relating to advice you have received from SLTs and other professionals on language(s) to use with your child, and your personal opinions on the topic. No questions will involve personally identifiable or sensitive data.

6. How will the information be recorded and analysed?

Answers will be recorded though Jisc Online Surveys. All answers will be automatically anonymised and IP addresses will not be recorded. Complete questionnaires will be used to analyse the opinions and advice received by bilingual parents of children with SLCN. If you would like to be entered into the prize draw (see below), our email address will be collected through a separate Jisc Online Survey through a link at the end of the research questionnaire.

7. What are the benefits and risks of taking part?

Participants finishing the questionnaire will have the option of entering a prize draw for a £25 Amazon voucher. In addition, your contribution will be used to expand the understanding of parental considerations on making decisions about bilingualism for children with SLCN. As there is very little research about this, the research can be used as a starting point for further studies. There are no anticipated risks of taking part in this study.

8. Will my information and comments be confidential and anonymised?

No sensitive information will be collected. Answers will be automatically anonymised through Jisc Online Surveys so you will not be identifiable either by the researcher or in any ensuing reports or publications. Personal information provided, such as your child’s age and diagnosis, will be treated in the strictest confidence and will be used solely for the management of the research project. Any email addresses collected for the purposes of the prize draw will be stored separately such that your responses are not able to be linked with your email address.

9. Where will my data be stored?

Anonymised electronic data and a separate list of email addresses will be stored on password-protected Jisc Online Surveys, and exported to secure UCL drives. The email addresses will be deleted once the student researcher graduates. The questionnaire responses will be stored securely in the UCL drives for 5 years.

10. What happens if I want to withdraw?

You can exit the questionnaire at any time by closing the webpage and none of your data will be retained. Once your questionnaire has been submitted, it will not be possible to withdraw data from the study as responses are entirely anonymised and it will therefore not be possible to identify individual responses.

11. How will my information be used?

Your information will be collated together with all the participants’ data and analysed. These results will be reported in a dissertation for the award of Trina Jia Ying Ng’s MSc Speech and Language Sciences. Results may be published in a journal or presented at conferences. This data may be used for other teaching or research purposes by the supervisor.

12. If I have any questions or complaints, who do I contact?

The researcher at University College London is postgraduate student Trina Jia Ying Ng, trina.ng.19@ucl.ac.uk. The Principal Researcher is Dr Alexandra Perovic.

If you wish to raise concerns or make a complaint about anything that happens during your participation in the study, please contact the Principal Researcher (Dr Alexandra Perovic, a.perovic@ucl.ac.uk).

If you feel that your complaint has not been handled to your satisfaction by the Principal Researcher and other members of the research team, you can contact the UCL Language and Cognition Department Ethics Chairs (Dr Merle Mahon, merle.mahon@ucl.ac.uk or Professor Rosemary Varley, rosemary.varley@ucl.ac.uk).

 

Notice:

The controller for this project will be University College London (UCL). The UCL Data Protection Officer provides oversight of UCL activities involving the processing of personal data, and can be contacted at data-protection@ucl.ac.uk

This ‘local’ privacy notice sets out the information that applies to this particular study. Further information on how UCL uses participant information can be found in our ‘general’ privacy notice:

For participants in research studies, click here

The information that is required to be provided to participants under data protection legislation (GDPR and DPA 2018) is provided across both the ‘local’ and ‘general’ privacy notices.

The lawful basis that will be used to process your personal data is: ‘Public task’ for personal data.

Your personal data will be processed so long as it is required for the research project. If we are able to anonymise or pseudonymise the personal data you provide we will undertake this, and will endeavour to minimise the processing of personal data wherever possible.

If you are concerned about how your personal data is being processed, or if you would like to contact us about your rights, please contact UCL in the first instance at data-protection@ucl.ac.uk.

Thank you for reading this information sheet and for considering to take part in this research study.